Hospice says 'thank you' to family who helped to raise funds in daughter's memory

PUBLISHED: 11:47 02 January 2019

Sophia Clemence, 7,  holding an award to recognise the legacy of her twin sister. Picture: CONTRIBUTED

Sophia Clemence, 7, holding an award to recognise the legacy of her twin sister. Picture: CONTRIBUTED

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A hospice charity has thanked a Little Hallingbury couple who have raised more than £100,000 following the death of their daughter at just eight-days-old.

The Clemence family have held many charity events for EACH over the years. EACH. Picture: CONTRIBUTEDThe Clemence family have held many charity events for EACH over the years. EACH. Picture: CONTRIBUTED

Charlotte and Grant Clemence have hosted a fundraiser for East Anglia’s Children’s Hospices (EACH) every year since their daughter Fleur died in 2011.

Fleur is survived by her twin, Sophia.

The couple, who have another daughter called Nancy Victoria, will no longer organise the fundraising event, known as Music for a Summer Evening, which has raised £131,248.72, although the event will still take place on their Little Hallingbury property.

Charlotte gave birth to Fleur and Sophia on May 4, 2011. The couple knew Fleur would not live for long as a rare heart condition had been detected at Charlotte’s 20-week scan.

The Clemence family have held many charity events for EACH over the years. EACH. Picture: CONTRIBUTEDThe Clemence family have held many charity events for EACH over the years. EACH. Picture: CONTRIBUTED

The left ventricle of Fleur’s heart was severely underdeveloped and her aorta was too small to pump blood around her body effectively.

The family went home for a few days together and EACH staff visited to help with care.

Karen Newton, EACH Cambridgeshire and west Essex fundraising manager, said: “It’s always very poignant when bereaved families decide to fundraise for us. For Charlotte and Grant to have continued their support over such a prolonged period really is something special and demonstrates just how much our service means when families are going through what’s almost certainly the toughest period of their lives.

“It costs us £5,600 a day to run our service in Cambridgeshire and west Essex, so Charlotte and Grant have paid for more than 23 days since 2011. A huge ‘thank you’ to them and we look forward to continuing the success of Music for a Summer Evening, that has been a fitting tribute to Fleur and left a lasting legacy in her name.”

Following Charlotte and Grant’s decision, EACH plans to take on the organisation of Music for a Summer Evening.

EACH, whose royal patron is the Duchess of Cambridge, relies on voluntary donations for the majority of its income and each year needs to raise more than £10 million from fundraising and charity shops.

The charity also needs an additional £10million to develop hospice services in Norfolk.

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